I have to admit that, at first, it was very hard for me to understand how I could be feeling so lousy all the time and have so many symptoms and then receive this type of news but then, it hit me and I realized that, for the first time and after only 7 months of taking Tysabri, I have already improved a bit!
I know that this medicine is not a cure (and neither is the cranial manipulation therapy that I have been doing and that might be helping my body's healing process) but it is certainly doing something because I am finally without new lesions, I have been relapse free for the past 7 months and I have been able to walk better and faster and I know that the huge lesions that I have in my brain (and one is really huge!!) are getting smaller...
The symptoms that I have been dealing with for the past 3 months have been quite tough on me because I found that cognitive and emotional/mental problems are definitely more difficult to take for me than physical pain, and I hope that it was just another of my MS steps and experiences and that they are not going to present themselves too often in the future.
I will continue taking a day at a time just like I always did but now I have a reason to celebrate and to believe more in this medicine than ever!
It took me to try 4 different medications to get to this point, but I guess it was worth it!
My 8th Tysabri Infusion: Month of September
The month of September was, once again, completely different from the 3 previous months.
While I have been feeling lousy for quite some time, the month of September has brought me many surprises and many more improvements.
And while I was feeling quite sick and I had no idea if I would be able to go back to my country, I did go back and I feel that the trip helped me a lot.
Not only did I learn a lot about myself and about my body but I have also been able to get the proof that I needed to see that some of my health problems are caused by stress.
Going back to my country has brought me back to the times when I was able to relax at any time and take the time to do everything I needed to do and I never felt pressured in doing everything as fast as I have to do here.
It’s not about a simple vacation. It’s about a lifestyle that I have been missing for way too many years.
Anyway, talking about symptoms and improvements, I can say that I felt great, that except for a very few, strong, but quick electrical shocks and some balance problems, I felt absolutely wonderful!
The walking has improved so much that I feel like I am moving just as fast as I used to before MS took away my ability to walk and I am finally able to go up and down the stairs without having to hold on for dear life to the railing.
It all started thanks to Italy.
Many are the staircases that I had to do and many are the hills (and quite steep too!) that I had to do to get to the places that I wanted to see and, in a matter of days, the miracle happened: I improved even more and now I am able to do things that I wasn’t able to do before.
I guess that, to do the hills and the many stairs, I was moving different muscles, my legs were getting stronger and stronger and I felt becoming more and more confident. I was able to go down steps without holding on to anything and I was able to walk up the hills with incredible speed and stamina.
I was and I felt strong and I even forgot to be sick many times!
While in the States, there is no day when I don’t think about my disease (and I am usually sick anyway, so it’s hard for me to forget that I have MS) back in Italy, I was so taken by the joy of being home and I felt so good that I put aside my illness and I lived fully and deeply!
Tysabri and the cranial therapy or simply the faith that I have and the power of happiness, in which I believe in very strongly, made me feel better and it allowed me to have the greatest homecoming ever!
TM