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While going through the questions that are asked to the patients before starting the process of taking Tysabri, because the symptoms that I was experiencing are one of the many symptoms of PML, I received a visit from Dr. Calabresi that came to check on me and that wanted to make sure I was ok in receiving the medicine.
After finding out that it’s probably the MS that is causing the cognition problems that I am having, I got the ok from the doctor and the infusion was started.
I am not sure why or how this can happen, but as soon as Tysabri went into my body, I felt my mind clear and the confusion leave me and I was ready to go back to feeling like myself again.
While I recognize the “power” of Tysabri and I have accepted it in my life, I am still not willing to take other drugs and I don’t accept very well when I am offered pills to deal with the symptoms of my MS, especially not since I have mentioned that I do very well with the care that I receive by the cranial therapist that I have been seeing for more than six months and that has done wonders for me.
My new doctor is a very caring one and I can see that he wants me to feel better and not to suffer in any way, but I wish that he could be more open to other methods of care that I believe in and not be too focused on just medicine.
I mentioned that Tysabri is more than enough for me and that is all I want to take because I understand that I have to take it, but I would like to leave the rest of my care to the cranial doctor who finds ways to take care of the many symptoms of this disease in a natural way.
This would help me physically and mentally and I have proven to myself to be the perfect person to receive cranial work because it is really working for me.
Every time something new comes up, I am able to go to him and have it gone with his help, sometimes in a matter of hours! And whatever he does lasts for days and weeks at a time and I found it truly amazing!
I feel that Tysabri, in conjunction with the cranial sacral therapy, is the best way for me to take care of myself and to improve my wellbeing and my health while having MS.
The rest of the month went quite well and except for a couple of days of cognitive difficulties, I continued to feel pretty good all the way to my next infusion. I have been able to be full of energy and desire to do a lot of work and, while it was quite stressful in certain expects of this, I felt that I was able to deal really well with it.
The energy and the stress started when I realized that no one seems to care about Dr. Zamboni’s research, an Italian doctor that found a very different way to present and to treat MS and I worked really hard on getting the word out in every possible way. I continue to stay up until the wee hours of the morning and the passion that I feel for everything I am doing is keeping me strong, happy and full of energy!
After finding out that it’s probably the MS that is causing the cognition problems that I am having, I got the ok from the doctor and the infusion was started.
I am not sure why or how this can happen, but as soon as Tysabri went into my body, I felt my mind clear and the confusion leave me and I was ready to go back to feeling like myself again.
While I recognize the “power” of Tysabri and I have accepted it in my life, I am still not willing to take other drugs and I don’t accept very well when I am offered pills to deal with the symptoms of my MS, especially not since I have mentioned that I do very well with the care that I receive by the cranial therapist that I have been seeing for more than six months and that has done wonders for me.
My new doctor is a very caring one and I can see that he wants me to feel better and not to suffer in any way, but I wish that he could be more open to other methods of care that I believe in and not be too focused on just medicine.
I mentioned that Tysabri is more than enough for me and that is all I want to take because I understand that I have to take it, but I would like to leave the rest of my care to the cranial doctor who finds ways to take care of the many symptoms of this disease in a natural way.
This would help me physically and mentally and I have proven to myself to be the perfect person to receive cranial work because it is really working for me.
Every time something new comes up, I am able to go to him and have it gone with his help, sometimes in a matter of hours! And whatever he does lasts for days and weeks at a time and I found it truly amazing!
I feel that Tysabri, in conjunction with the cranial sacral therapy, is the best way for me to take care of myself and to improve my wellbeing and my health while having MS.
The rest of the month went quite well and except for a couple of days of cognitive difficulties, I continued to feel pretty good all the way to my next infusion. I have been able to be full of energy and desire to do a lot of work and, while it was quite stressful in certain expects of this, I felt that I was able to deal really well with it.
The energy and the stress started when I realized that no one seems to care about Dr. Zamboni’s research, an Italian doctor that found a very different way to present and to treat MS and I worked really hard on getting the word out in every possible way. I continue to stay up until the wee hours of the morning and the passion that I feel for everything I am doing is keeping me strong, happy and full of energy!
My 11th Tysabri Infusion: Month of December
The 11th infusion went really well and I continue to work every day and I almost forget that I have MS!
There is no comparison between the way I used to feel before I went back to Italy for 3 weeks and the way I feel now. Things are much better than they used to be but things continue to change quite fast for me…In fact, things changed quite a bit during the second week of the month. Suddenly, the cognitive problems reappeared in full force and I found myself having trouble doing even the smallest tasks! Writing and thinking started to require a lot of more time than usual and I was very frustrated every time I wasn’t able to think clearly and to come up with the right words to express myself.
. I have to say again that I prefer physical pain to having cognitive problems and it’s quite hard for me to have entire days when I can’t do my work and I have difficulties doing the simple everyday tasks. After 5 days of very hard cognitive and stomach issues, I started having problems with my heart and with breathing. My chest started hurting and burning and so was my stomach and most of my intestinal track. I had days when I felt that I couldn’t breath properly, I had some light vision problems (mostly blurriness), light balance problems and I had a very heavy sensation on the chest-heart area that, in the past, would have brought me to the ER (and it did a couple of times) but that now I just learned how to deal with.
There is no comparison between the way I used to feel before I went back to Italy for 3 weeks and the way I feel now. Things are much better than they used to be but things continue to change quite fast for me…In fact, things changed quite a bit during the second week of the month. Suddenly, the cognitive problems reappeared in full force and I found myself having trouble doing even the smallest tasks! Writing and thinking started to require a lot of more time than usual and I was very frustrated every time I wasn’t able to think clearly and to come up with the right words to express myself.
. I have to say again that I prefer physical pain to having cognitive problems and it’s quite hard for me to have entire days when I can’t do my work and I have difficulties doing the simple everyday tasks. After 5 days of very hard cognitive and stomach issues, I started having problems with my heart and with breathing. My chest started hurting and burning and so was my stomach and most of my intestinal track. I had days when I felt that I couldn’t breath properly, I had some light vision problems (mostly blurriness), light balance problems and I had a very heavy sensation on the chest-heart area that, in the past, would have brought me to the ER (and it did a couple of times) but that now I just learned how to deal with.
TM