I was under a lot of stress and my body reacted to that and to the fact that I wasn’t able to eat the right foods and get the rest that I needed at night. I never took naps in my life and I still never do now that I have MS and this is why a good night of sleep for me is fundamental to survive a whole day and to recharge my batteries!
This month I was able to walk in deep snow without holding on to anybody and I was able to have good balance and make big, long steps. I saw people slip on the ice, but I wasn’t one of them. I guess I am more cautious and I watch where I walk!
In the middle of the month, when things got a little better and went a little back to normal, I went back to exercise and to keep strong and this helped me be looser in my movements and feel more energetic. On the 23rd of the month, I went to Hopkins to do my 11th MRI and, the day after, the 24th, I received the Tysabri infusion which went really well and that, aside for the body pain and feeling tired, didn’t give me any problems. My good vein is back and it worked fine!
When I got back home from Baltimore, I received the MRI results and I found out that I DON’T have any new lesions! It seems that Tysabri, the cranio sacral therapy and the high dose vitamin D is the right combination of treatments for me.
This month I was able to walk in deep snow without holding on to anybody and I was able to have good balance and make big, long steps. I saw people slip on the ice, but I wasn’t one of them. I guess I am more cautious and I watch where I walk!
In the middle of the month, when things got a little better and went a little back to normal, I went back to exercise and to keep strong and this helped me be looser in my movements and feel more energetic. On the 23rd of the month, I went to Hopkins to do my 11th MRI and, the day after, the 24th, I received the Tysabri infusion which went really well and that, aside for the body pain and feeling tired, didn’t give me any problems. My good vein is back and it worked fine!
When I got back home from Baltimore, I received the MRI results and I found out that I DON’T have any new lesions! It seems that Tysabri, the cranio sacral therapy and the high dose vitamin D is the right combination of treatments for me.
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My 15th Tysabri Infusion: Month of March, 2010
I am noticing more and more changes in my lifestyle and I see that, while I don’t feel good for the whole month, I usually get to live fairly well for most of it.
There is usually one time during each and every month when I have a couple of very difficult days when I need to go to my cranial doctor and ask for help. He is usually the person that helps me feel better and I have learned not to ask my Hopkins doctor for help. I know that, if someone is not aware of the way the body really works, I will be offered the drugs that I so want to ignore and don’t want to take, so I prefer going to my therapist because he wants to find the cause of my problems and not just cover it.
I have also learned, once again, that my mind has more power that anything else…and this can cause me some physical problems and it can also make me feel better.
I didn’t feel very good for a couple of days after doing some heavy work in a house that was quite dirty and I ended up stressing my body so much that I was counting the days that separated me from the appointment with the cranial doctor. When I got there, he could tell that I had been through a lot and he told me to slow down and to “refind” my balance and my happiness…so I did. I took time for myself again, I came back to my clean, neat and organized world and I felt much better. This was a matter of the mind and while many doctors would have offered me plenty of pills to control what I was feeling, I simply realized that I had to make a change with what I was doing.
I had my 15th Tysabri infusion on the 21st of the month and, once again, everything went well. I often mention this without remembering that my blood pressure is always quite low when the medicine goes into my body and all the nurses are a little worried about it and they don’t feel comfortable letting me walk or leave the infusion center before it comes up to a normal level. Once again, my mind has incredible power…and so do the people that I consider special! For about 10 months or so, I found out that I have a very simple way to raise my blood pressure (and the nurses are aware about this by now!:) I simply start taking about Dr. Greenberg, my old Hopkins doctor. As soon as I mention him, the way he is, the way he listens to me, the way he cares and understands, I start smiling, my heart gets happier and…my blood pressure raises right away!
It is not a secret any more and I make sure to remind the nurses that the only thing that we can do is to talk about Dr. Greenberg and I will be fine!
I think of something positive while I am doing something that, while I know I have to do it, I would prefer not to…and I found a very nice way to convince my body to feel better and to accept Tysabri. Two days after my infusion, I started my trip to Oklahoma and to Texas where I spent 8 days. While I didn’t feel too good physically (because of constipation, some electrical shocks in the head, not being able to sleep for non MS reasons and the food change) I felt so good emotionally and I was extremely happy to see the many special friends that live in those two states.
There is usually one time during each and every month when I have a couple of very difficult days when I need to go to my cranial doctor and ask for help. He is usually the person that helps me feel better and I have learned not to ask my Hopkins doctor for help. I know that, if someone is not aware of the way the body really works, I will be offered the drugs that I so want to ignore and don’t want to take, so I prefer going to my therapist because he wants to find the cause of my problems and not just cover it.
I have also learned, once again, that my mind has more power that anything else…and this can cause me some physical problems and it can also make me feel better.
I didn’t feel very good for a couple of days after doing some heavy work in a house that was quite dirty and I ended up stressing my body so much that I was counting the days that separated me from the appointment with the cranial doctor. When I got there, he could tell that I had been through a lot and he told me to slow down and to “refind” my balance and my happiness…so I did. I took time for myself again, I came back to my clean, neat and organized world and I felt much better. This was a matter of the mind and while many doctors would have offered me plenty of pills to control what I was feeling, I simply realized that I had to make a change with what I was doing.
I had my 15th Tysabri infusion on the 21st of the month and, once again, everything went well. I often mention this without remembering that my blood pressure is always quite low when the medicine goes into my body and all the nurses are a little worried about it and they don’t feel comfortable letting me walk or leave the infusion center before it comes up to a normal level. Once again, my mind has incredible power…and so do the people that I consider special! For about 10 months or so, I found out that I have a very simple way to raise my blood pressure (and the nurses are aware about this by now!:) I simply start taking about Dr. Greenberg, my old Hopkins doctor. As soon as I mention him, the way he is, the way he listens to me, the way he cares and understands, I start smiling, my heart gets happier and…my blood pressure raises right away!
It is not a secret any more and I make sure to remind the nurses that the only thing that we can do is to talk about Dr. Greenberg and I will be fine!
I think of something positive while I am doing something that, while I know I have to do it, I would prefer not to…and I found a very nice way to convince my body to feel better and to accept Tysabri. Two days after my infusion, I started my trip to Oklahoma and to Texas where I spent 8 days. While I didn’t feel too good physically (because of constipation, some electrical shocks in the head, not being able to sleep for non MS reasons and the food change) I felt so good emotionally and I was extremely happy to see the many special friends that live in those two states.
TM