The members of the MS Family on YouTube!
Irishbear76, Mark, age 35, diagnosed Multiple Sclerosis, Summer 2003. Indiana USA. I am 35 years old and I work as a professional in the health sciences field. I am an MS activist and community leader and spend much of my free time giving support to fellow sufferers. I am married (Angela) and I have two daughters Madilynne (9) and Anneleise (18 months).
Donotconcede, Judy age 46, diagnosed RRMS July 28, 2008, Maryland, USA Joined YouTube after seeing videos by Irishbear76, Angelusa73 and MSVlogSupport. I knew then I had to do something and figure out a way to do a YouTube video too. I'd found other people just like me and I wanted to talk to them. I went partially deaf in mostly my right ear, but steroids were administered and my hearing returned. I have some disability walking and for my "therapy" used Copaxone when Avonex began to damage my liver and made me feel real sick all the time. I take a variety of vitamins including high doses of vitamin D, and Omega 3. I am currently also taking an angiotensin receptor blocker, which "might" help MS. I research on the net all the time and found the CTV video on Chronic Cerebrospinal Venous Insufficiency (CCSVI) with Dr. Zamboni. I believe this theory more than the "my immune system is in explicably attacking the myelin around my nerves."
These are some of the many members of the big MS Family that was born on YouTube.
Some of us make videos and share our stories and experiences in front of the world, others listen and support us, others write to us and give us their friendship. Strong bonds have been built and new friendships have blossomed.
Our journey is shared with everyone and we are fighting MS together!
omexmc80, Omario, age 29, Diagnosed RRMS March, 2008, UK & USA. My manger at the bank noticed I was having regular symptoms with numbness, memory loss and pain. This reminded her of her brother who had MS and asked me to go to the docs. I went to go see a Neuro who said I had signs of a central inflammation disease and was booked in for an MRI (kept on missing my MRI appointments as I was in the USA) finally my friend from the USA took me back to the UK so I have the MRI and I got diagnosed with MS. After 18 months of fighting this disease by myself I found the great MS family on youtube who have helped me get back on my feet.
Omario had the Liberation procedure in June of 2010 in Bulgaria.
He created the MS Family song!
TM